FGFR Syndromes Research Study Launched
We are pleased to announce the launch of FGFR Syndromes Research Registry! The FGFR Syndromes Research Registry creates a platform for patients around the world to strengthen their voices and share information about FGFR syndromes. FGFR syndromes currently have no cure. Designed with the input of scientists and patients, this global resource will provide data for researchers to use to advance drug development and treatment options to help improve FGFR syndromes patient care. Join now and let your data tell your story!
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