Contact Us

We're here to help


Contact Us

Sponsor

Born a Hero, Research Foundation
Bornahero.org
18327 Yew Way, Snohomish, WA, 98296


Registry Contact

Carolina Sommer
registry@bornahero.org
425-894-8448


IRB

North Star Review Board
https://learningirb.org/
info@northstarreviewboard.org 


Social Media

Born a Hero Page | Facebook
Born a Hero Support Group | Facebook
Born a Hero | Instagram
Carolina Sommer | LinkedIn
Born a Hero | Newsletter


Visit the National Organization for Rare Disorders home page at rarediseases.org.

Institutional Review Board (IRB)

An Institutional Review Board, for the purpose of protecting your/the Study Participant’s rights, has reviewed this registry. An Institutional Review Board is a group of people who are responsible for protecting the rights and welfare of people who participate in studies. For questions about your rights as a Study Participant in this Registry or to discuss other study-related concerns or complaints with someone who is not part of this Registry team, you may contact North Star Review Board at https://learningirb.org/.